Klippel Feil Support

 

Support for Adults with Klippel Feil Syndrome

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Hi! My name is Amy and I was was born in 1967. Presently I teach Adult Basic Education and English as a Second Language. I live in an apartment in the great state of MN. I enjoy reading, writing, movies, TV, travel, my family, church activities, and sad to say, summer (even though I live in MN, I am not a winter person)! Growing up I learned to play the piano, was in choir, and took ballet and tap lessons.

I was born with Klippel-Feil (KFS). I was born with the fusion in my cervical vertebrae, and I also have scoliosis and kyphosis. I was born with a cleft palate, underbite, hearing loss, hypernasality, and involuntary synkenesis. My kyphosis was treated with a Milwaukee brace, scoliosis was treated with an ESO stimulator, cleft palate was fixed 2 times, had jaw surgery, have tubes in my ears, and use hearing aids. I have also developed sleep apnea and use a CPAP.